Professional life of a rare disease patient – Part 2
150 150 Maria Kammerer

Continued from Part 1 My eyes opened almost after an hour leaving me completely surprised when I found two schools to the discussion now. Everyone was still stuck in their respective places. Vihaan was waiting…

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Getting back to work after a rare disease diagnosis
Professional life of a rare disease patient – by Rachit Shah
560 315 Maria Kammerer

Deep realization somewhere shifts my focus implying ‘People see the DISEASE in you, before they see YOU.’ I often wished more people could have understood the invisible side, even those who seemed, really didn’t. It’s…

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playing table tennis to conquer Isaac's Syndrome
Your idea of fun will change – by Rachit Shah
1920 1271 Maria Kammerer

‘’I would like to see ANOTHER well articulated, inspirational piece of work coming out soon. Your endeavor to help others should act opposite to the Law of Diminishing Marginal Utility ’’ said readers who were…

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Take the Strand Herditary Cancer Risk Test
Don’t Blame Your Genes
708 612 Hardeepsinh Rathod

“Alright, let’s beat them with a difference of 10 points”, I told my partner at a routine weekend badminton game as I bent down to pick up my racquet. As I went down, a rush…

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When the Philadelphia Chromosome Strikes
150 150 Maria Kammerer

by Guest Author: Dr. Namitha A Kumar OPFORD project, Strand Life Foundation Hospitals are places where human drama of illness, pain, suffering, turmoil and turbulence play out. A keen observer can learn a lot just…

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Shout out for Rare Disease Awareness
A Roar for Rare
560 315 Hardeepsinh Rathod

“Wow, my son scored 88%”, shouted my dad, as I showed him my annual mark-sheet. Unlike my friends’ parents, my dad was quite contented with what I scored every year. I have seen my friends’…

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Danger - Asbestos - Mesothelioma and Lung Disease Hazard
Mesothelioma: The Role of Asbestos and Gene Therapy in India
560 315 Maria Kammerer

Asbestos has deep ties in the fabric of Indian industry and construction. Behind China, India is the second largest market for asbestos in the world, importing hundreds of millions of dollars worth of the material…

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pedigree chart for genetic testing
Spread the Word: Make a Genetic Test Work for Your Family And Clan
560 315 Shefali Sabharanjak

  How do we react to a life-changing experience? Do we get overwhelmed or do we accept it and turn it around to make the most of the situation? Now you are wondering whether this…

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battling cancer with a targeted approach
Cancer is a ‘Battlefield’
560 315 Hardeepsinh Rathod

Cancer therapy is a fast evolving field in medicine. Introduction of new and targeted therapies is the latest, marvelous development in this field. The explanations of the differences between established and new therapies for cancer, provided by Mr. Rathod, in this blog post, hit the nail on the head!

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Experience and Resolution of a Rare Disease: Mr. Rachit Shah Shares His Story
150 150 Shefali Sabharanjak

Anne Frank once said: “If I haven’t any talent for writing books or newspaper articles, well, then I can always write for myself.” Inspired by her, I thought of penning down a lot from my…

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